My COVID-19 Journey

Your voice matters.  And the simple act of sharing an experience — whether it’s just a couple of lines or several paragraphs long — is needed to better inform the decisions shaping how our communities respond to this crisis. All it takes is 5-10 minutes of your time. Watch our video and see our FAQs for more info.

Initiative Sponsors

How does this work?

Imagine a marriage between a social media post and an on-line survey.  You’re asked to share an experience on a suggested topic (you can choose from several).  You then answer a short set of questions that clarify important context about what you chose to share.  And you’re done (unless you want to share more experiences—which you are most welcome to do!)

How is this different?

While it’s easy to post pictures and tweets about what you’re experiencing, the collective patterns of these individual experiences remain hidden from view.  Similarly, while surveys are great at capturing information and opinions, they don’t capture important meaning and context behind the responses people provide.


Our tool captures your experiences and associates it with important context that informs the feelings and opinions you express (i.e. – why you feel a certain way or hold a certain opinion).  The methodology we employ ensures the context of an experience is never removed from its interpretation, and the interpretation of an experience is never removed from the context that informs it.

Why does it matter?

It’s impossible to overstate the power of this kind of inquiry.  With the ability to collect tens of thousands — or even hundreds of thousands — of shared experiences and their particular meanings, it suddenly becomes possible to explore the patterns of meaning and meaning making.  Negative and positive patterns become evident, as well as the rich context behind them.  


More importantly, the patterns this process helps to expose provide a foundation for making wise decisions about how we might amplify some patterns and dampen others.  We can even test the impact of decisions we make via the same kind of process, allowing us to more easily observe and measure how patterns have shifted (illuminating, for example, whether there are more of the desirable kinds of stories and fewer of the others). 

Who's behind this effort?

This initiative is a global, public-private partnership led by its founding sponsors.  These sponsors have underwritten the costs associated with developing initial instruments, and will continue to support all hosting and management of efforts to collect experiences under the initial set of instruments.


The founding sponsors will also underwrite the costs associated with initial data analysis and efforts associated with helping organizations that can immediately benefit from insights gained.


Extended instrument design, collection and analysis may be underwritten by additional sponsors or funding provided through a variety of channels.


You can view a list of all other individuals and organizations who have made (or have committed to make) significant contributions of time and talent to this effort at (this list updates frequently).

Who will use the information?

Various forms of the collected data and related findings will be freely shared with others, with an emphasis on providing insight and decision-making guidance to leaders of national, state and local governments, their agencies, and non-profit organizations.  Among the entities expected to receive data at this time include:

  • The US Department of Health and Human Services
  • The University of Nevada, Reno Research Integrity Office
  • The Institutional Review Board
  • Federal, state and local governmental authorities, and
  • National, regional and local community-oriented, non-profit organizations.


Any organization interested in the data and / or findings from this study may submit a request via e-mail to (to help ensure a prompt response, use “My COVID-19 Journey” in the subject line).

“…narratives that capture our emotions are just as powerful as forecasts based on economic data.”
— Robert Shiller, Nobel Laureate and Yale University Economist


Partners & Contributors

Reflections on These Times

KNPR Interview with Dr. Tamara Wall

More about


“The data may hold the answers, but stories tell us which questions to ask and… why the answers matter.”
— Roni Zeiger, Data are Shadows of Stories